Tag Archives: spoons 4 spoonies

Wordless Wednesday…With Some Words

Because it’s always easier to bear the pain ourselves, than to watch those we love suffer.

JamieFraser

I always say I have it easy being the sick one. While it’s no fun being in pain, and dealing with chronic illness, I would take this any day over watching Scotty suffer. He often has the raw end of the deal, having to hold my hand, without being able to help me feel better.

If it were you, which side of the bargain would you choose?

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Ask Away Friday Vol. 1

Once again I’ve been inspired by Miss Tracie.

After reading her post a few weeks ago, I was intrigued by this #AskAwayFriday thing. I commented on Twitter and was encouraged to join their Facebook group. I did and I got my first swap!

PicMonkey Collage

Lanaya from Raising Reagan graciously volunteered to be my first swap. Lanaya describes herself as an “OCD perfectionist  raising a precocious toddler.” She shares everything from life as a working mom, fitness tips, and recipes. I’m looking forward to getting to know her better, so be sure to pop over and see her answers to my questions!

And now, my answers for her:

1. You recently became the proud parents of Todd, a cute little dog. What breed is he and did you happen to ask the previous owner how he came about his name?

Todd is a purebred Lhasa Apso. As for his name, his last owner told us that all pets get names when they are brought into rescue. Todd was the name he was given, though we don’t know why. He answered to it well, so his last owner never changed it and neither have we.

2. You created Spoons for Spoonies as a way to help people dealing with sickness know that they are not alone; someone is in their corner. When did you start this mission?

Spoons 4 Spoonies was officially created in June of 2013, though Cindy and I had been brainstorming for a few months prior. Rene and Rob both came on board early this year and we feel like this is the perfect mix of people. We’re hoping to ramp up our outreach, so if you have time, please check out our campaign!

3. You have stated that you love helping people, yet it makes you anxious. {A therapy breakthrough!} What adjustments have you made to calm your anxiety?

Oh lordy. Well, the honest answer is that I haven’t made many adjustments yet. I have a list of things I need to work on, but I’m horrible about it. My therapist really wants me to be focusing my energies on more self-care. I’m just awful about setting that time aside for myself, I still would rather help someone else. It’s a work-in-progress.

4. I suffer from the “don’t take my own advice because why should I?” dilemma that you do on occasion. My biggest piece of advice that I constantly ignore is to “Just Breathe.” What advice do you give that you think you ignore the most?

This can be tied into the answer above. I’m always telling people how they need to take care of themselves so they can be better for their loved ones. And yet, I just can’t seem to get myself to do it, even though I know it’s for the best.

5. You mentioned that gift baskets make you crazy happy. What is one gift basket you would love to make and who would it be for?

OOH! It’s so hard to choose just one! The thing I love about gift baskets is being able to personalize them. So for you, I’d probably include things like: organizer tabs for your planner, a bartender’s cocktail book, personalized recipe cards, or fun headbands for when you work out.

6. My daughter Reagan LOVES artichokes! She will either eat them with mayonnaise or melted butter with lemon. Do you dip your choke in anything?

I love them with mayo! (Not exactly figure friendly, but where’s the fun in that?!) I also make a yummy bacon-artichoke dip that is great with warm bread, which is my preferred method of chowing down on chokes 🙂

7. You own more slippers than shoes .. care to share how many pairs of slippers you own?

At the moment I have two pairs of soled slippers, two pairs of fuzzy indoor slippers with non-skid bottoms, and at least three pairs of non-skid slipper socks. I also have two pairs of moccasins which are both shoes and slippers.

8. Name one favorite song from the 80’s, 90’s and 2000’s that you love … Go.

It’s so hard for me to pick just one favorite, so I’ll name a song that kinda personifies each era for me…

80’s – Don’t You Forget About Me, Simple Minds

90’s – Everlong, Foo Fighters

00’s – Seven Nation Army, The White Stripes

9. What is your favorite guilty pleasure to eat?

Oh man! I love food, so this mostly depends on my mood. The above mentioned bacon-artichoke dip is a big favorite. Nachos are always acceptable. Pretty much anything with either cheese or chocolate, really. Ha!

10. My signature question:

a. Trade places with one blogger for the day .. who do you pick?

If I could also get their writing ability, I choose Teala from Melt Into The Text. I’ve always wished I could write poetry and such. Teala has a lovely way of spinning words into a feeling or visual that always leaves me touched.

b. Trade places with one blog for the day … which blog do you takeover?

I’d love to take over Tracie’s blog From Tracie. Of all my blogger friends, she has it all together. A great look, a mix of light and serious, tons of wonderful photos. I aspire to have my blog be more like hers.

c. Trade places with one celebrity for the day … who do you become?

Oh goodness! Well, I wouldn’t mind being Mrs. Chester Bennington for the day. Or the soon to be Mrs. Johnny Depp or Mrs. Adam Levine.

(It’s a good thing my fiance knows I love him!)

d. And finally … trade places with one historical figure for the day … who do you choose, what day {if applicable} and why?

I struggled with this question the most. While there are many historical figures I would love to meet or interview, I don’t think I could be strong enough to take their place for the day. I’ve always admired Jackie Kennedy Onassis, for example, but I don’t think I could have her poise and strength. So while I’d love to interview her, have coffee with her, I wouldn’t want to trade places with her. Does that make me a chicken?

 

I had SO MUCH fun doing this swap! I can’t thank Lanaya enough for all of her thoughtful and fun questions. Please check out her site and see what questions I asked her and her answers!

Please Help Me Help You

There are a number of people who have made this life with chronic illness much more than just livable.

From day one, my fiance has held my hand through all the peaks and valleys. He’s rubbed my back as I lay crying in pain and he’s argued with doctors to fight for the care I deserve and need. He’s been my rock, my champion, my  caregiver, and so much more.

From early on, I’ve had friends who spilled their love and support across the interweb lines. Dawnie, Teala, Tracie, Cathi, Cindy, Fallah, Natalie, Andrea, and so many others sent care packages, cards, letters, and any helpful tips they could find.

Cathy, Kristen and Seth, and Kerry have brought smiles to my days. They stopped by with care packages, came to watch movies and chit chat, made me feel feminine with a new haircut, and made me laugh over a game of cribbage. They all let me know they were only a call or text away. They supported my fiance while I was in and out of the hospital.

All of these bright spots in my life have become family. And if I think back, I know opening my heart to find friends who understood my battle all started with Misty reaching out to me. Misty, and all of these wonderful people, showed me that it was possible to thrive, love, and LIVE while still battling chronic pain and illness.

They gave me a reason to not give in and give up. They give me hope.

I created Spoons 4 Spoonies as a way to share that hope with others. I know not everyone who fights this battle has someone in their corner. I know that being sick can be isolating and make us feel so very lonely. I know what it’s like to lay in bed and wonder why I bother to get up at all.

Spoons 4 Spoonies is for all of us who fight something that can’t be seen. It’s for our loved ones and caregivers. At its very core, it is love.

For months now, we behind the scenes at S4S have been brainstorming how to spread that love even farther, how to offer more ways to change lives and better the world. We have a ton of ideas, including care packages, spoon jewelry, t-shirts, and motivational cards created from original artwork. We’ve outlined some initial plans to expand our reach and we’re eager to start as soon as possible.

Since we are just a few of us with a big dream and limited bank accounts, we’ve started an Indiegogo campaign to try to raise funds. None of the money raised is for personal use, every last cent raised will go to Spoons 4 Spoonies’ mission.

As much as I despise asking for help, I need y’all to help. Please check out the campaign. If you can contribute, I will be forever grateful. If all you can do is share the campaign with others, I will still be grateful. Every single act, every single dollar, helps.

We just want to make this world a little brighter, like someone once did for us. Won’t you please help?

Month of Positivity- Day 15

MOPBlog

 

November 15, 2013

My self-care has been and continues to be resting and being kind to myself while I battle this flare. Apparently I pinched something in my left leg at some point Wednesday night because I was fighting nerve pain in my lower left leg all day yesterday. I panicked when it started to progress up my leg last night and called my doc. I’m on anti-inflammatory medication now and the pain has eased a bit. The flare is hanging on, but I’m hanging in. My fiance brought home Chinese take-out for dinner last night, so I’m also counting that as self-care. It was divine and nothing upset my tummy, which is a HUGE win these days!

I’m thankful for the online spoonie community.

Whether it’s my Spoons 4 Spoonies page, my gals from The Band, or any of the other online spoonie groups I’ve joined via Facebook and the Tweeter machine, I know someone will always understand me.

Something I’ve experienced myself as well as heard from any spoonie I’ve met is that we feel alone and misunderstood. When we look “normal” and well on the outside, it’s hard to find those in our lives who can see the pain and struggles we deal with on a daily basis. When our friends are off having fun and we’re home fighting a flare, we feel alone and left out.

The online spoonie community takes some of that away. We share inspirational quotes and funny photos to cheer each other up. When we have a new symptom, there’s someone to talk to while we wait to see the doctor again. They are the friends we may never meet, but they KNOW us. They understand all that we’re feeling, even when we don’t have the words to describe it. They are pioneers on the paths to better care for us all.

To show a bit of gratitude, I’m sharing their links here so that you may all go and check them out. You can tell them I sent you, or not, it’s your call. But please take the time to send some love to the people who’ve held me up while I’ve been battling with recent flares.

Pajama Daze

Kicking RA in the Face

Spoon Shortage

Living Chronically Fabulous

Chronic Illness Cat

But You Don’t Look Sick

Finding Strength Through Pain

Rheumatoid Arthritis Guy

RA Chicks

Rheumatoid Arthritis Warrior

And of course, I can’t forget my friends in the Chronically Chatty group 🙂

These folks help me to keep swimming and give me hope on days when it’s lacking. Who or what has helped you through a rough time? Do you have a spoonie group that I should join? Please leave a link in the comments so I can check them out!