Tag Archives: Instagram

#ChronicLife -This Is My Life

Last week I saw a tweet from one of my personal heroes, The Hurt Blogger. She was going to be live tweeting 48 hours in her life, in the hopes to better portray how life with a chronic illness, specifically Rheumatoid Arthritis/Autoimmune Arthritis, really is. No holds barred.

I was inspired, and decided I would join her. Today is Rheumatoid Arthritis Awareness Day, after all, and what better way to raise awareness? So today and tomorrow you can find me on Twitter and Instagram, showing my life without any filters.

Britt (The Hurt Blogger) set out some ground rules for her live tweeting, and I will be doing much the same. During this time frame, I will do my best to accurately portray my life- the good, the bad, and the painful. I will be sharing information about my medications, my routine, and my multiple chronic illnesses.

My goal is simple. I think I do so much to not focus on the negative aspects of life, that I don’t really show the “real” me. I don’t like to dwell on the pain, and so maybe y’all don’t realize how near constant it is. Maybe I don’t show the days where I don’t have enough spoons to manage a shower (like today) or just how twisted and swollen my hands and feet can get. So my goal is to show what I hide, as much as possible.

I hope you’ll follow along with me, and get a better picture of my life. Not because I want your sympathy, but because with more understanding we can make strides in awareness. And more awareness can hopefully lead to more research, better treatment, and a cure.

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Truthful Tuesday: A New Path

I love and hate the Tuesday after a long weekend. On one hand, you’re already one day closer to Friday. On the other, you’re an extra day behind on emails and such. Here’s some other things about this Tuesday:

*I start Remicade infusions, a new (for me) treatment for Rheumatoid Arthritis, today. I’m both excited and terrified. I’m really hoping this is the right path for me, but I’m worried about side effects and that it won’t work. If it doesn’t work, we don’t know what the next step will be…

*My son starts 8th grade this week and I’m incredibly proud of him. However, I’m quite unsure where all the time has gone. How can he be nearly 14 already?!

*My house is alarmingly quiet and empty without my son’s excited energy here to fill it up. We miss him more than words.

*It is now under 11 months (and counting!) until our wedding. We’re trying to get serious about finding a venue and nailing down some other details, but also trying to remain calm and stress-free. It’s hard, yo,

*I’ve decided to link up with not one, but TWO photo challenges on Instagram this month. I’ve been bad about slacking on these in the past, so if you’re inclined to offer reminders, I’ll take them!

*I’ve really been craving Thai food lately. Clearly this means Scotty and I need to take a day trip to Portland to visit my loves and go to the food trucks.

*I’m incredibly grateful for Scotty, his boss, our circle of friends, and my doctors, who’ve all had a part in taking care of me and making my treatment both a priority, and a possibility.