Beacons Of Light

Probably one of the greatest feelings in the world is that of the extended family you get to choose for yourself. Or even better, the people who adopt you into their extended families. Working with Band Back Together, I’ve had the great honor to be adopted into a few families, and I’ve extended my group of siblings by many. My adopted sisters are the greatest friends I’ve ever had.

Another perk is all their kiddos.

I’ve always been a fan of kids. I’m certainly damn fond of my own little (not so little) guy. And while he’s too old to want to get Mama’s crafts in the mail, the kiddos of my friends seem to love the little things I make. And making gifts for them warms my heart in a way I just can’t find the words to explain.

The other day, I wrote a guest post for my gal Cindy, where I talked about one of my little heroes. Jack is a gem and I’m so blessed that his mom, Crys, has opened her family up to me. Jack’s wittiness lights up my Twitter feed and as Crys put it the other day, he touches the softest part of my heart. Each. Damn. Day.

Another of my adopted kiddos is Tracie’s daughter. Her bubbliness never fails to bring a giant grin to my face. When Tracie and I will have a video chat, Katarina will pop her head in to tell me about her cooking or show me the latest things she’s crafted. Our last chat, she used the webcam tools to give her mom a crown. My cheeks hurt from smiling so much.

Since I know you all know how much I adore Tracie, you can probably imagine how special I feel that she’s allowed me to be a small part of her daughter’s life. When I can, I include little bits for Katarina in my letters and gifts to Tracie. Their family has become a part of mine, and I hold them all very dear.

I’m sure to those who don’t understand, it sounds creepy that I’ve adopted these kiddos via my internet friendships with their mothers. Hell, when I read that sentence, it IS creepy. But the unconditional love that flows from these children is so very pure, you just can’t help but want to be a part of their bright light.

And on the very darkest of days, that light is a beacon of hope so strong it could save the world.

It certainly saves me.

A Swirling Mind

Anxiety is a bitch.

An unforgiving, take all the prisoners, give no quarter, fuck with every aspect of my life, no good bitch.

I don’t think I’ve always battled anxiety. Certainly I don’t remember being an overly anxious child. Somewhere around puberty and losing my grandmother, I started getting these nasty black-out headaches. When my parents’ remedies all failed, they gave in and took me to the doctor.

Or rather, the day my stepfather walked in and found I had blacked out in the middle of curling my hair and was in danger of setting myself and my bed on fire, they decided it was time I see the doctor.

As I’ve said before, I’ve never done medical stuff the easy way. It’s all or nothing here, folks.

The first doctor I saw was a quack.

He gave some mumbo-jumbo about puberty and hormone levels and told me to take some Tylenol. When we tried to explain that I had been eating Tylenol, ibuprofen, asprin, and many other over-the-counter pain relievers like candy for a number of months with no relief, he said there was nothing he could do for me.

We got a second opinion, and this doctor was a bit better. He diagnosed me with stress-induced migraines and recommended reducing the amount of stress in my life. He also prescribed Vicodin to be used as a last resort on the most painful of days.

I was 15.

Since that period of time, I’ve always associated stress with anxiety. The two are inextricably tied together in my mind, forever bound.

Now if you’ve been bored enough to read the blurbs about me, you’ll know that my family doesn’t believe in discussing mental illness. Have stress? Deal with it, it’s part of life. Need coping techniques? Better figure something out. Want to talk to someone? Tough luck. We don’t believe in therapy. We are NOT the kind of people who tell their secrets to strangers. Imagine what people would THINK.

Forced to learn how to deal with anxiety and stress all on my own, I developed my own coping tools. Music has always been an easy one. When things became too much, I would turn the music on as loud as I could tolerate, plug in head phones, and sing along at the top of my lungs. That is, until one of my parents would come tell me to shut up or one of my step-sisters would come and tell me how horrible my voice sounded. Their ridicule washed over like a bucket of cold water.

I also took to journaling my feelings, often writing letters to people that I would never send. A practice I later found is highly recommended by many therapists. This lasted until one of my step-sisters found my journals and spread them around our circle of friends, including my boyfriend of the time.

As each method of coping I tried came under attack by those around me, I searched for ways to control my surroundings. My former penchant for organization took on a new form as my room, my space became the only thing I could control.

I spent hours of my high school years organizing my books, cleaning and rearranging my room until everything had its place and it was in it. When that wasn’t enough, I would deep clean our bathroom, scrubbing the grout with an old tooth brush until everything smelled of bleach and shone white again.

I developed a form of OCD as a coping mechanism.

Seriously, how fucked up is that?

Now, as an adult, I’m usually aware enough to recognize when my OCD tendencies are taking over, and I’m able to take a step back to evaluate what triggers are setting off my anxiety. Because my battle with RA often makes deep cleaning an unrealistic therapy option, I’ve started singing again. On days this isn’t enough, I have to find little things I can clean or organize.

While I’ve been fighting a flare most of April, I’ve also been battling my anxiety. It’s hard to say exactly what triggered it. Most likely, it was the combination of multiple stressors. Finances, relationships, my family, my health, they all add up to a anxiety ridden cocktail swirling around my mind.

Last week, on the brink of losing what little control I felt I had left, I broke down.

I emailed my team at Band Back Together and told them I needed to take the rest of the month off. Of course, they were awesome and urged me to take whatever time I need.

I sat down with my fiance and explained as best as I could that some shit was going down in my mind, and I needed a little understanding on his part. Of course, he’s wonderful and has stuck by my side, no matter what battle I’m fighting. No matter that sometimes the fighting pushes me past a point, and I’m difficult to get along with.

I’m taking a deep, hard look at myself and I’m making some real changes. And while I evaluate what some of those changes need to be, I’m trying to be kind to myself. When the urge to clean, to take control, becomes too much to bear, I give in slightly. I organize my craft tools or color code my embroidery thread. Most days, I sing as loud as I can.

And every single day, I remind myself that I am on a path of healing. It may be long, it may have bumps and obstacles, but it is MY path and the destination will be so very worth the journey.

The Stories Behind The Game

Yesterday I asked you to pick which snippet about me was untrue. I loved seeing the responses here, on Facebook, and on Twitter.

It would seem that I picked some doozies since the responses were all over the map. Which makes me smile. Maybe I do have some stories left after all.

*I was once called a Nazi.

This is true. When I was younger, my family was in the military and we spent some time living in Germany. When we returned to the States, a little boy in my class called me a Nazi. It was the first time I can remember ever hating school.

*My high school graduation was held on ice.

This is true. I graduated from a small school whose basketball court/gym was too small to hold the crowds expected for graduations. They usually held such events in the newer and larger gym at the middle school but the year I graduated, there was some sort of conflict so we held the ceremony at the local ice rink. Since I was in the Midwest, this shouldn’t be a huge shock, but I’m from the West Coast, so it was odd for me. I sang at the ceremony and can STILL feel my legs shaking from the cold while I stood there trying to not let my teeth chatter in the middle of my song!

*I have a “hick” accent.

This is true. I grew up in a small farming community. While my mom works hard to hide the slight twang in her voice, my father doesn’t. My accent isn’t super noticeable unless I’ve been drinking or I’m very upset. Or if I’ve been chatting with my father’s family or my Southern friends. When I sing country, I can slip into the twang with barely a thought.

*Lilies are my favorite flower.

This is the lie. While I like lilies, my favorite flower is a daisy. When I was a kid, my mother and step-dad would have HUGE fights. Afterwards, he would always bring her home roses. I very early on associated roses with negativity. To this day, I refer to them as guilt flowers. As in, “He brought me roses, what did he do?” And so where most girls like roses, I despise them. Daisies have always struck me as simple and sweet. Innocent. I can remember sitting on the playground plucking the little ones that grew all over the field and playing “Loves Me, Loves Me Not.”

These are all such little tidbits about me, but things that most people in my daily life don’t know or notice. Thinking about it, I don’t think I purposefully keep them quiet. They’re just not things that come up in daily conversation.

Well, except the Nazi thing.

That’s not a story I share often as it still bugs me. I was barely ten years old and it scarred me. It’s the first time I can remember being openly judged, and in such a harsh manner. While the teacher did make him apologize, it still stung.

I had a lot of fun doing this, even if it did call up some ugly memories. We should do it again sometime, yes?

Liar, Liar

My gal Rebecca is participating in a writing challenge from Wego Health. While I’m not participating (I’m horrible at remembering to write each day.) her post yesterday sparked me.

I distantly remember the 3+1 game from school. Three truths and a lie. Can you guess which it is? I thought this would be a fun blog for those of you who don’t already know all my stories. And for those who know me best, maybe there are things you still don’t know.

So here goes. Leave your guesses in the comments and in my next post I’ll fill you in.

*I was once called a Nazi.

*My high school graduation ceremony was held on ice.

*I have a “hick” accent.

*Lilies are my favorite flower.

I’m gonna tag Tracie, Teala, Dawnie, Andrea, and Nat because I’m beside myself with curiosity. These gals all have interesting stories, I have no idea what they’d come up with. So get to writing, ladies!

I’d also like to guess about your life and learn something new, so if you wanna play, leave your links in the comments!

Spring Cleaning

Most people associate Spring with cleaning.

That beautiful act of cracking open windows that have been sealed against the winter’s brutal cold, relishing in the fresh (if a tad bit too crisp, yet) air while wielding dusting supplies and grand ideas about reorganizing and simplifying their home. I am not immune to this wonder even considering my love-hate relationship with housework. It’s just so satisfying knowing that your house is clean. Like, ridiculously clean.

As someone who values the connection between my mind and my physical health, in the last few years I’ve also made a habit of cleaning out the cobwebs in my emotional and mental homes. Spring cleaning for your soul is just as important as re-alphabetizing your DVD’s. (What?! You don’t do that?? Craziness, I tell you!)

Clearing out the clutter, throwing away the drama and breathing in that fresh air is vitally important to staying sane. Each day we plug into our friends, co-workers and acquaintances via social media or texting. And each day we take in their drama, stress and garbage.

Take a minute or two and think about it. You log in to check your messages and instantly you’re flooded with “trash”. Joe Blow has done such-and-such thing to so-and-so and aren’t we all just so very pissed at him? Jane Doe is having a crumby day and her world is falling apart and can’t we feel sorry for her? Your fourth cousin twice removed is mad at his ex for this and that and wants the world to know it.

Without thinking, we take this all in, digest it and file it into our little Rolodex minds while letting the emotions attached swirl around us. And how many of these people that are affecting us are necessary in our lives? One out of every five, maybe. Unnecessary, and yet, their drama has just become part of our mood.

So how do we fix this, you ask?

Spring Cleaning.

Take five minutes and clear out the “friends” on your social networking sites that aren’t necessary for one reason or another. If it’s that one girl you worked with three years ago that you never socialize with, you can probably delete her. And if it’s someone that you can’t delete (maybe it’s a relative or someone that would take it personally and cause more drama than it’s worth), most sites have a way for you to modify your news feed so that certain people’s updates don’t flood your screen.

Sometimes it’s a little tougher than that, though. Take the “friend” who only calls or texts when they have a crisis. That’s when you have to make a decision. Do you keep forsaking your mental well-being just to be a good friend…or do you stand up for yourself and put up some boundaries with this person?

Since revamping my life to live with chronic illness, I’ve struggled with keeping on top of my mental and emotional housekeeping nearly as much as I’ve struggled with my household chores. It takes energy to turn inward and evaluate whether my relationships are where I want them to be.

This Spring I’m trying to be brutally honest with myself. I know some of my relationships aren’t where I would like them to be. Mostly, I know there are some that are really unhealthy for me and I need to just let them go. I very much dislike confrontation, however, and so I’ve been dragging my feet. All the while knowing that each day, week, month I don’t stand up for myself and say something is just making the inevitable that much more difficult.

But I’m on a path of healing, and I knew when I started that some parts of this path wouldn’t be easy.

Guess it’s time to put on my big girl panties and do some cleaning…

**This post is revamped from a post on a previous blog of mine.

Trading Places

I’ve been fighting yet another flare.

While this one isn’t as bad as some I’ve had, it’s dragging on as the weather remains unpredictable. A new cold front every few days has had me curled up on my couch most days with little to no energy and feeling pretty achy.

Yesterday was the first day in a while I’ve felt up to going out anywhere. Which is good, since the cabin fever was setting in. We ran errands, picked up groceries, and picked up some prescriptions. Nothing too strenuous by most standards, but by the time we got home my feet were screaming in pain.

With little regard to anything else that needed to get done, I curled up on my couch and promptly passed out for the better part of an hour. I woke up feeling rested, with a renewed energy.

Until I tried to stand.

I had traded pain in my feet for pain in my hips and knees.

A year ago, this kind of frustrating realization would have had me angry at the injustice of it all. Instead I chuckled wryly to myself.

I remarked to my fiance that my life with RA seems to be a constant stream of trade-offs. If my joints are being kind, I seem to be plagued with fatigue. If I find myself with energy, my joints are hurting too bad to move. If I want to go out at night, I must sleep most of my day to be ready. If I want to spend my day writing or working, I’m unable to cook dinner or help with chores because my hands will be unusable.

Like I said, there was a time where these frustrations would have made me very angry. And honestly, there are days that the anger is still there. Mostly though, it’s just a sad realization. While I miss the self I used to be, I think I’m finally coming to terms with the self that I am now.

I’ve accepted that I will live the rest of my life with this disease. NO, this does not mean I’m giving in or giving up. It’s just a simple fact. I have it and there is (not yet) no cure.

However, that doesn’t mean that I intend to just lay down and die. Now that I’m not fighting against the facts, I find that I’ve freed up mental energy to find tricks and tips to LIVE with my disease. While I may not always like the restrictions RA places on me, I can still enjoy many of the things I used to. I just needed to shift how I was approaching things. I needed to change my pattern of thought.

I know I couldn’t be this positive without the wonderful people I have in my life. Many are fellow spoonies who’ve shared their experiences with me. Their words showed me that RA didn’t have to be a death sentence. Their love showed me that I’m strong enough to continue living.

It’s a hell of a trade-off, but I’ll take living over giving up any day.

Taking Back The Power

Today is a day for jokes and pranks.

While I love a good joke, I’m not a huge fan of pranks. And the first of April marks a very different day for me.

April is Sexual Assault Awareness Month.

As a survivor, April is the month I join with others to spread awareness and education. I firmly believe that not only do we need to teach our girls to be strong and show them the signs to recognize an unhealthy relationship, but we also need to raise our young men to treat every one with respect. If we can do this, we can raise young people that have healthy relationships and who respect each other.

Last year, I wrote about my intimate partner rape for Band Back Together. I also wrote about learning to be a survivor. These two stories are important pieces of me. Even more important is the story of how to survive.

Rape, in any form, leaves scars. Those scars will never go away, though with time they will fade. Like any trauma, rape can cause the survivor to struggle with PTSD. Triggers and flashbacks are a very real likelihood.

In the years right after I left my abuser, I had frequent flashbacks. It seemed everything was a trigger. A green semi truck on the road, men who walked or talked a certain way, a song on the radio, even certain foods or restaurants. I struggled each time something triggered me. It would take all my strength to stand my ground and not go running.

Over time, some of these triggers have faded. The flashbacks are less frequent. So infrequent, actually, that it takes me a few moments to recognize them for what they are.

Last week while napping with my fiance, something triggered me. Whether it was the feel of a rough sheet under my cheek or the way the air brushed my hair across my face, I don’t know. All of a sudden, it was a different voice whispering “I love you” in my ear, it was a different hand that rested on my hip.

I froze.

As the memory faded, and I could once again see the here and now, I was left near tears. My fiance held me as I tried to make sense of what had just happened. And as he rubbed my back, all of a sudden, it didn’t matter. I realized those flashbacks only had power if I gave it to them.

I am a survivor.

I have overcome so much, surely I will not allow a bad memory to bring me to my knees. I have someone who loves me now, who will never hurt me. His love and understanding give me strength to stand up to those memories of my past and shove them away.

I have the power over how I allow my past to affect me. And I refuse to allow my abuser to have any place in my life, not even in my mind. He is nothing and he no longer has any power over me. This is part of my path of healing.

I am in charge of me. I’ve taken back the power.

 

**We at Band Back Together are focusing on Taking Back The Power this April. If you would like to share your story, we would love to help you on your path to healing.